Ready? Set. Roll! Wheelchair donation changes the lives of two Pasco boys with SMA
PASCO, Wash. – We've brought you the story before of a Pasco family with two young boys battling Spinal Muscular Atrophy. It's a disease that's robbing them of their movement.
On Wednesday, the family experienced some good news—all possible because of a company locally that’s making an impact.
Twins, Harper and Hendrix, will never walk, but now they can roll.
"Good job, look at you!" their mom Crystal Ramos says as the boys push themselves in their new wheelchairs.
The boys both suffer from SMA, a disease that robs these kids of their physical strength, taking away their ability to walk, eat, or even breathe.
But Permobil in Pasco is giving these boys a chance of independence, by donating custom fit wheelchairs in the boys' favorite colors with flashing wheels too.
"Tag, you're it, tag, you're it!" Harper calls out to Hendrix as they wheel around and play tag.
These new, light-weight wheelchairs will help the family enjoy the little things Ramos says.
"That was the first thing they said yesterday when I said ‘We're going to go get your chairs,” they said ‘Oh we get to go to Target or we get to go to the stores!’” Ramos explained with tears in her eyes.
Whereas before, the boys were restricted to the house or a stroller.
"A double stroller makes you feel like you're a baby still and now with their independence, and their own wheel chairs, they can feel like almost 4-year olds,” she said.
"I think it has definitely enhanced their confidence and they can see that they can do it."
Employees at Permobil say they don't usually get a chance to meet the people they serve.
"You could definitely see a lot of people fighting tears back after they got a chance to meet the family and the kids," Director of Customer Support Mark Westphal said.
Westphal says it was heartwarming to see Harper and Hendrix on the move.
"It makes us understand why we do the work we do every day," he said.
"Say Thank you,” Ramos says. “Thank you!" Hendrix repeats.
Ramos says it was a pleasure to touch the hands of the people who have touched their lives.
"Because you know they usually don't get any limelight, any thank you because they are the workers in the back and it was so nice to be able to put a face to the people who really made a difference in the boys' lives," she said.
The best words to describe this feeling for the boys, Ramos says, is finally free.